The Mom & Me Journals dot Net
The definitive, eccentric journal of an unlikely caregiver, continued.

Apologia for these journals:
    They are not about taking care of a relative with moderate to severe Alzheimer's/senile dementia.
    For an explanation of what these journals are about, click the link above.
    For internet sources that are about caring for relatives with moderate to severe
        Alzheimer's/senile dementia, click through the Honorable Alzheimer's Blogs in my
        links section to the right.

7 minute Audio Introduction to The Mom & Me Journals [a bit dated, at the moment]

Wednesday, June 11, 2008
 
I want to mention...
...quickly, before continuing through preparations to head out the door, I am both astonished and affirmed at all the confirmation I'm getting currently, as well as depending on memories from reading similar online journals, of the necessity for keeping after institutional medical care and filling in the gaps on one's own. I have to say, even some of the aids and nurses at the facility where my mom is currently and temporarily residing have mentioned to me that they fully support my involvement and find it sadly curious and unfortunately that "not everybody" housed there for rehab has such familial support.
    So, you know, it's a double-edged sword, the situation of avocationally seeing someone through an institutional stay. On the one hand it can be an in-the-moment irritant for personnel. On the other, at the end of the moment the staff is grateful that someone is picking up the slack that the administration of medical institutions currently guarantees will occur.
    We're all in this together, I guess, and it's maddening for all.
    Gotta git...NOW!
    Later.
Comments:
Gail--Thinking about this post... I think most families are compelled to place their loved ones in care facilities because the basic care (toileting, eating, dressing, washing, lifting) become too much for them. These families aren't necessarily exhausted by simply spending time with their loved ones--in some cases this time becomes more enjoyable once the other obligations are met by the facility--but the entire "package" is no longer doable for the average spouse, daughter, son, etc. How to acknowledge that caring is a joint effort? From all accounts, residents whose families are involved also get better care from the staff. And I think there's more to this than meets the eye--I don't think it's simply a matter of the staff members feeling like they're more accountable because the family members are around to watch them. I think--at least from my experience--that they come to know the resident more intimately by knowing the family and, by the same token, if family members take a few minutes to get to know them then some kind of relationship is formed. In a longterm situation, at least, it's important for the family to carve a place for themselves--aside from the "we're paying you to do the work" relationship.
 
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